Monday, July 19, 2010

Monday July 19

284.5

My period started. What a pleasant suprise! NOT. So talking about this is hard for me (not my period ha). I sit at the computer a lot. Like maybe 8+ hours a day. I can do little chores but I tire easily and take lots of breaks. That is getting better since I have been moving more. The hardest thing for me to do is schedule things outside of the house. I can take my kids to practise. They tell me when and where and I go. I hate going to new places. I usually don't go alone. I have to schedule Blaine and Lucas' physicals and I had to reschedule a part of my imaging for my surgery and my office visit with my physician.

The physicals scheduling went fine. I called the number for St. Francis imaging that had been left on my voicemail while on vacation and it was long distance. My imaging is in Gig Harbor. I don't have long distance on my home phone. Using the cell stresses me out because I dont' have good coverage (why did they have to change this I think). I call the number on the paper Dr. Oh's office gave me. It's not long distance. They transferred me, I was transferred again, I got a voicemail. I left a message. I went to the bathroom. The phone rang. I didn't have it. I missed the call. It was St. Joseph hospital. UG They didn't leave a message. What does that mean? Am I suppose to call back or do they? I called the local imaging phone number again and was put on hold. I held for a few minutes and hung up. Called Dr. Oh's office, got voicemail, hung up. Got on my cell called the number back that called me from St. Josephs and explained. Got transferred to scheduling, left a message. She called back to tell me that she doesnt' schedule St. Anthoney's and she transferred me. Guess what? I got another FUCKING voicemail! So I left a message. I hope she calls me back and I have a phone by me. I have so many things to do for my surgery between now and Aug. 5 that I just want to crawl into a hole. I am not good with a busy schedule. Some of my friends thrive on it. I break out in a sweat and want to cry. I am shaking as I type this.

Positives! I made 3 successful appointments today. One for me and one each for Blaine and Lucas. Frutrating! Trying to reschedule this damn diagnostic thing. And my period. Oh my lovely gift from God. BLA!

Between now and Aug. 5 I have to do the following
7/20/10 Dr. clearance from my doctor (she is on maternity leave so I see a PA)
7/21/10 11:00 am tentative Diagnostic imagining ( nothing to eat 8 hours prior.) blood work unine analysis ekg abdominal ultrasound chest x ray pft with Sa 02. I know it sounds worse that it probably is but that is a lot and no one explained to me if this is just one appointment or all. My Dr. isn't easy to get a hold of.
07/22/10 START CLEAR LIQUID DIET! God help the people around me (wait I am having a positive attitude).
7/25/10 SUNDAY 12:15 Breathing test and EKG Don't have to fast so that's ok.
7/26/10 9-Noon Pre surgery education and nutrition class
1 PM Last office visit ( I have only met with the Dr. once)
3-5 Psych eval. HA! What now. I already know that I am crazy!
07/28/10 Pre-op by phone Noon
08/05/10 5:30 AM Check in! Are you kidding me?

I couldn't do this on my own. Gayle is going with me on my busy day. I love you soooo much Gayle!!! Mark should go to the nutrition class but Gayle will understand more and be more of a help to me. I couldn't read the form I just wrote out. Gayle told me what was when then I could look at it. My mind doesn't absorb what I see (as well)until after I hear it.

OK This was good to get off my chest.

Andi out!

1 comment:

  1. Andi, I so completely understand these things that you are feeling and am so empathetic for you! You are not alone in your frustrations and anxieties! I, too, struggle with simple things like going to a new place or taking the kids to their appointments (or even picking up the phone to make appointments for them or myself.) I was this way even before beginning cancer treatment, so I know that's not to blame. (Though it is worse now than ever.) I know that there are many people, especially ME, who would drop anything to help if we knew what to do to help you through all of this. You have my thoughts, prayers and love but if you need MORE ... if you need someone to come over and help out, take you to an appointment, take the kids to practices, etc. ... just know that I will be there for you in a minute! You are such a neat person - funny, loving, down-to-earth and caring ... I hope you know that you are loved and cared about UNCONDITIONALLY. You can do this, Andi!

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